Brain haemorrhages
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Ascender
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Re: Brain haemorrhages
I didn't realise it's been that long either - last update on the Lego thread was months ago too. Hopefully he's just going better things to be doing than updating us, hope all is good with him.
Cheers,
Mike.
Mike.
Re: Brain haemorrhages
Message from teacherboy via email:
“I'm good - just back at work full time and managing my energy reserves”
“I'm good - just back at work full time and managing my energy reserves”
Re: Brain haemorrhages
That's fantastic news
Re: Brain haemorrhages
Excellent 
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DeskJockey
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Ascender
- Posts: 4226
- Joined: Thu Apr 12, 2018 12:07 pm
- Location: Proper Up North
- Currently Driving: Polaris ATV, Hilux, Navara, Dakar
Re: Brain haemorrhages
I had a (very) brief exchange with Teacherboy via email over the weekend. 2-word summary : recovery continues....
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Ascender
- Posts: 4226
- Joined: Thu Apr 12, 2018 12:07 pm
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Re: Brain haemorrhages
Great to hear.
Seems to be a lot of health issues affecting people I know just now so good to know his recovery is continuing.
Cheers,
Mike.
Mike.
Re: Brain haemorrhages
I always worry when these health posts pop back up with new content that it’s going to be something bad, great to hear he’s still recovering
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teacherboy
- Posts: 214
- Joined: Thu Apr 12, 2018 9:48 am
Re: Brain haemorrhages
Always warms my heart when people who you've never met randomly message you because it's been a while since you've been on an inconsequential internet forum 
Updates are warranted by that criteria
It's now been 2 years since my life was well and truly turned upside down - I'm still having seizures and they fecking suck.
Was going well up until November 2024, meds working (seemingly) but then had 3 seizures in one day.
First was at 3.05pm on a Friday afternoon during term time - luckily we kick out at 3pm, scared everyone shitless, came back to full awareness around 5pm, they told me an ambulance would take ages, but they'd called my wife who had spoken to a couple of mates who were on the way to get me.
Second was around 5.30pm in the car of the mate who was driving, second mate was trying to stop me eating my tongue (he won't do that again) - apparently parked at the side of the road for some time (more than an hour) whilst my brain rebooted, and he was confident enough to drive.
Third was in A&E behind the scenes as they wanted to monitor me (ECG etc), I remember being there covered in wires talking to my wife - until I had the final seizure, for which my wife did a full pull curtains open "Help me" shout and 12 medical staff descend on me.
That earned me a catheter, the weekend in the hospital, an increase in meds and (relatively fast) appointment with the neurologist.
Another bump in medication to the max dose that you can have of it (Lacosamide)
All will be well now.............
Nope!
During April - another seizure, luckily during Easter
During May - seizure at 6.20am in morning, wife films this one at request of neurologist (must send him the footage), during day am obviously groggy and a little disoriented. Wife is concerned so calls NHS 111, goes through the questions, and they want to talk to me ......
Had ............. A ............. Seizure .............. Whilst ..................... On ............ The .............. Phone!
Amazing how fast an ambulance gets to you when that happens!
Now on hybrid meds, is early days yet, but would like this to stop now.
It's not fun, everyone is my mum now and trying to be nice (offering lifts to bus stop etc. even though my bus is at 6.47am).
Friends and family call me endless names - spacker, spazzer, mong, mongboy, retard etc. (Which I don't actually mind as it helps me accept my situation more easily)
Thanks for remembering me, I am part of the Facebook group and do actually comment there occasionally - look for Simon Brown and you'll know I'm somehow, unbelievably, still alive.
The docs who treated me for the May seizures had the most dumbstruck faces when my wife did the medical history
They did however confirm that in a normal universe - I should be dead already
Updates are warranted by that criteria
It's now been 2 years since my life was well and truly turned upside down - I'm still having seizures and they fecking suck.
Was going well up until November 2024, meds working (seemingly) but then had 3 seizures in one day.
First was at 3.05pm on a Friday afternoon during term time - luckily we kick out at 3pm, scared everyone shitless, came back to full awareness around 5pm, they told me an ambulance would take ages, but they'd called my wife who had spoken to a couple of mates who were on the way to get me.
Second was around 5.30pm in the car of the mate who was driving, second mate was trying to stop me eating my tongue (he won't do that again) - apparently parked at the side of the road for some time (more than an hour) whilst my brain rebooted, and he was confident enough to drive.
Third was in A&E behind the scenes as they wanted to monitor me (ECG etc), I remember being there covered in wires talking to my wife - until I had the final seizure, for which my wife did a full pull curtains open "Help me" shout and 12 medical staff descend on me.
That earned me a catheter, the weekend in the hospital, an increase in meds and (relatively fast) appointment with the neurologist.
Another bump in medication to the max dose that you can have of it (Lacosamide)
All will be well now.............
Nope!
During April - another seizure, luckily during Easter
During May - seizure at 6.20am in morning, wife films this one at request of neurologist (must send him the footage), during day am obviously groggy and a little disoriented. Wife is concerned so calls NHS 111, goes through the questions, and they want to talk to me ......
Had ............. A ............. Seizure .............. Whilst ..................... On ............ The .............. Phone!
Amazing how fast an ambulance gets to you when that happens!
Now on hybrid meds, is early days yet, but would like this to stop now.
It's not fun, everyone is my mum now and trying to be nice (offering lifts to bus stop etc. even though my bus is at 6.47am).
Friends and family call me endless names - spacker, spazzer, mong, mongboy, retard etc. (Which I don't actually mind as it helps me accept my situation more easily)
Thanks for remembering me, I am part of the Facebook group and do actually comment there occasionally - look for Simon Brown and you'll know I'm somehow, unbelievably, still alive.
The docs who treated me for the May seizures had the most dumbstruck faces when my wife did the medical history
They did however confirm that in a normal universe - I should be dead already
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DeskJockey
- Posts: 5724
- Joined: Thu Apr 12, 2018 8:58 am
Re: Brain haemorrhages
That all sounds complicated, difficult, and frustrating. But also supportive and supported. And, obviously, glad to hear you're still upright.
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Driving a Galaxy far far away
Driving a Galaxy far far away
Re: Brain haemorrhages
Hi teacher', it's good to hear from you.
I wasn't sure about using that phrase, it doesn't feel right with events, but after the May doctors' comments it's probably understated. I think I was expecting/hoping for a "Meh, recovery continues, bored now" update - as I'm sure were you
So, yeah, after reading that, it's very good to hear from you
I wasn't sure about using that phrase, it doesn't feel right with events, but after the May doctors' comments it's probably understated. I think I was expecting/hoping for a "Meh, recovery continues, bored now" update - as I'm sure were you
So, yeah, after reading that, it's very good to hear from you
Re: Brain haemorrhages
Great to hear from you mate.
The very best of luck with everything!
The very best of luck with everything!
